Gabby's First Easter

Suzanne climbed into the wheelchair to go to Kiddie Kandids for Gabby's 5 month portrait. After a couple of weeks in the house, with only visits to the various doctors, it's good to get her out and back into mainstream society. She is adjusting well and is looking forward to visiting with friends very soon.

Here's one of the photos we took today. The doll was one of the first gifts we received after finding out Suzanne was having a girl. Nella found a matching outfit and we thought it would be great to put them together. Gabby is thriving, thanks to constant attention from mommy and grandma. Sadly, next week she gets another series of shots; I'm glad we took the portrait first.

Prosthetist

Wednesday afternoon Suzanne met with a prosthetist to discuss possibly fitting her for temporary legs, in an effort to move the progress forward at a faster rate. However, due to the scarring and weak skin on the lower legs, he would like to wait until the future shaping operations have been completed before fitting. The risk would be in tearing the skin or wounds moving her backwards instead of ahead. He showed us a prosthetic leg with a quick release socket mechanism, which will be easy to operate. It involves a silicone sleeve with a peg on the bottom. Once the sleeve it worn, the new leg mechanically fastens to the peg. An image can be seen here on Corbis, but it is right protected and I don’t want to get anyone upset.

On Monday, Suzanne had nerve conduction testing performed on her right arm. There is nerve damage or obstruction in the forearm, which is preventing her from using her hand effectively. The test electrically stimulated the nerves and muscles for abnormal responses. It yielded informative but disappointing results. It didn’t reveal the cause of the signal loss, but located where the good nerves end and the damage begins. The hand specialist will review the results before we return to Baltimore to discuss the results with the hand specialist.

Other than that, the game plan is to continue waiting the remaining weeks until meeting with the surgeon about reshaping the legs.

Hand Center

Today Suzanne met with a hand specialist to discuss the next course of action on her upper extremities. He would like to wait until Sue has had her prosthetics fitted prior to doing any work on her hands. She will need to keep the strength she has when using walking devices. But there are many things he can do to increase mobility and function, over time. Sue will have some nerve stimulus testing performed soon, to see where they will need to start. However, this was expected, based upon our meeting on Thursday with her surgeon at WHC. His plan is for Sue to come back in six weeks to see if her legs scars and skin are healed enough to begin further sculpting. But for right now, he wants her home, for the six weeks.

Reunited

Here we are; the happy family. It has been a long time since we have been photographed together and we are glad to present our strong and vibrant Suzanne. Sue spent much of this weekend resting, but today she had an opportunity to read all of your comments posted here on the blog. She’s overwhelmed by your constant support. Tomorrow she restarts her therapy to build the necessary strength for the future surgeries. Thursday, her surgeon will assess her legs and devise a game-plan. And the following Monday we are scheduled for Baltimore to look at her hands. Much progress has been made, but there is still much to do…