Friday, December 19, 2008
Continued Strides
Tuesday, November 11, 2008
First Steps Redux
For Larger Versions of these images, click on the slideshow to visit the folder where they're located.
Sunday, October 26, 2008
One Year Ago Today
Thursday, October 9, 2008
Simply Amazing
Happy Birthday Suzanne
Wednesday, September 24, 2008
Mother Warriors, Monica appears on Oprah
Tuesday, September 9, 2008
How It's Made
Wednesday, August 27, 2008
One more down...
Thursday, August 21, 2008
Olympic Amputees
Thursday, August 14, 2008
Sepsis in the News
UPDATE: Here is another WSJ article from August 27th, focusing on Sepsis
Monday, July 28, 2008
Next Surgery Date Set
Monday, June 30, 2008
Britain's "Beauty Season"
An article found here introduces a new show in the UK based on the "next top model" franchise. The show features eight models who have some sort or severe disability. Says the article "The show's creators hoped the series would challenge pre-conceived notions of beauty and raise disability awareness." I agree that it will challenge preconceived notions about disability, but I'm not convinced it isn't just a ratings grab. (UPDATE: Series Complete - Official Website HERE)
Sunday, June 29, 2008
Forever Friends
Front Row: Kris Anne, Sally and Lori. Back Row: Suzanne, Denise, Christine (Holding Gabby).
This is just another example of how wonderful her family and friends have been through the whole ordeal. Suzanne is lucky to have such good people in her life.
Suzanne would also like to express her sadness at the departure of her home care occupational therapist, Carly, who has recently relocated out of the area and will not be able to continue participating in her recovery. Carly had been assisting Suzanne twice a week to regain function in her hands. Thank you Carly. Keep in touch!
Monday, June 9, 2008
Home Again
Tuesday, June 3, 2008
One step closer...
The operation focused on the shape and structure of Suzanne's left leg. The two bones, tibia and fibula, had fused together during her original hospital stay, probably due to her increased metabolism for healing and scarring. By waiting until she has returned to homeostasis, the chances of a repeat fuse are unlikely. Dr.
Monday, June 2, 2008
Surgery Tomorrow
This morning, Suzanne will be heading to the WHC for blood work, in preparation of her surgery tomorrow. The operation is going to focus on shaping her left leg, but may include the right. However, they are not scheduled to work on her hands. She will have an overnight stay to monitor her vitals, but she’ll be home on Wednesday. Suzanne is, understandably, not looking forward to the operation but is anxious to have them completed.
Sunday, May 11, 2008
ESPN Magazine Article
Tuesday, May 6, 2008
On her Nerves
Sunday, April 27, 2008
Counting Down
Friday, March 21, 2008
Gabby's First Easter
Here's one of the photos we took today. The doll was one of the first gifts we received after finding out Suzanne was having a girl. Nella found a matching outfit and we thought it would be great to put them together. Gabby is thriving, thanks to constant attention from mommy and grandma. Sadly, next week she gets another series of shots; I'm glad we took the portrait first.
Thursday, March 20, 2008
Prosthetist
On Monday, Suzanne had nerve conduction testing performed on her right arm. There is nerve damage or obstruction in the forearm, which is preventing her from using her hand effectively. The test electrically stimulated the nerves and muscles for abnormal responses. It yielded informative but disappointing results. It didn’t reveal the cause of the signal loss, but located where the good nerves end and the damage begins. The hand specialist will review the results before we return to
Other than that, the game plan is to continue waiting the remaining weeks until meeting with the surgeon about reshaping the legs.
Monday, March 10, 2008
Hand Center
Sunday, March 2, 2008
Reunited
Friday, February 29, 2008
Homeward Bound
Monday, February 25, 2008
Day Pass
Yesterday, Suzanne's doctor allowed her the opportunity to come home for the day. The intention was to present the real-world obstacles and daily challenges she will be encountering when she returns home next week. It will allow her to focus her efforts in this final week at the NRH. By working with countertops, baths, the bed, crib and such she was able to practice navigating these obstacles in and out of the wheelchair. One major problem we discovered is pushing the chair through the heavy carpet pile. With the assistance of Joe, Sue completed her daily exercises at the house. Along with him, were both sets of our parents and the baby for the emotional temporary homecoming. I regretted having to drive her back to the hospital for her 8PM curfew. However the end is nigh.
Tuesday, February 19, 2008
Rehab
It has been a week and a half since moving to the NRH. Suzanne has been spending about 3 hours per day doing intense physical therapy. This includes weighted leg lifts, stair climbing, balance exercises and transfers in and out of the chair. The goal is to improve her mobility and independence upon returning home. We have just heard that this should be at the end of the month. We anticipate she will be home for a few months before returning for further operations in preparation for prosthetics. Being out of the hospital environment will allow her to eat better food, spend more time with the baby (and me), and be outdoors while preparing mentally for life ahead. We’re all very excited about the news and look forward to updating you soon.
Sunday, February 10, 2008
Monica
Friday, February 8, 2008
All Moved In
Tuesday, January 29, 2008
Winning Design(s)
The other design we liked, and the vote winner among the other graphic artists was the one, with the "star people" (left). It was also well designed and captured a feeling of hope. Therefore, we asked if we could use the design, in addition to the first. Fortunately we can!
Unfortunately, we cannot pin down a date until Suzanne has had an opportunity to get out of the NRH and on with her life. Nor do we know when her future surgeries will take place. Of course we will keep you posted. However, in the meantime, if you would like to wear your support for Suzanne, visit the Official Shops: Design 1 & Design 2 are both available.
Sunday, January 27, 2008
Walk with Suz T-Shirts
When I made the post on January 10th, about the Walk With Suz 5k, I received a lot of responses, both by email and comments on this page. Upon further thought, and discussion with Suz, we decided that it would be a fun event, in a year or so - when she is walking again. Of course we don't have a date yet, but I found a route on MapMyRun.com which is a good place to start. I think it would be better to start/end at the FDR memorial and do a similar loop to that one.
I also visited Worth1000.com and asked their talented designers to come up with some t-shirt designs, for the future event. They came up with over 30 Entries! Please have a look at all 4 pages of designs and let me know what design you like the best. I only have until next Friday to select the winning design. I have a few favorites already. But it will be tough to decide. They are all so well done. I would like to hear what you think.
Thursday, January 17, 2008
Closer to Moving
When Sue does move from the recovery ward to the rehab hospital, the goal will be for her to strengthen herself mentally and physically to prepare for wheelchair living. She will not be ready for prosthetics for some time. She will still need future surgeries for her right hand and to sculpt her legs for proper fit and comfort. Additionally she will need time to build her upper body strength and hand function, so she can support herself when taking those first steps.
Thursday, January 10, 2008
Walk with Suz
This woman has chosen to wear the prosthetics which look less like actual legs and feature the support shafts. The other option would be cosmetically similar legs. Personal taste may have something to do with choices, as may insurance. I'm not sure which route we will end up taking.
Having your own knees, when learning to walk on prosthetics, is superior to above the knee amputation. Therefore, once her arm strength returns, I feel, it will be only a matter of time before she is walking again. Maybe I should plan a "Walk with Suz 5k?"
Monday, January 7, 2008
Surgery Success
Sunday, January 6, 2008
Surgery Tomorrow
We were able to bring the baby in today to see Suzanne. Gabby was cooing and smiling and standing in my lap. Sue got to hold her for a little while, but as the baby was fidgety, she was difficult to hold. It is nice to have her so close to the hospital at Bob & Nell's temporary apartment, so we can bring her in more frequently. They have been taking care of her on a regular basis, with my parents coming in on the weekends to give them a break. I know I couldn't do it without all of their support.
Saturday, January 5, 2008
Gabby's Christmas Photo
Motivational Propaganda
I was looking online for a representational image which I can use to help motivate Suzanne through her pending rehabilitation. As she is currently bedridden, and not yet independently mobile, her first step will be to get into a wheelchair. It will be a miraculous day when this happens. However, that is going to be but a temporary pit stop, en route to walking again on her own. I looked for one with the universal "no" sign. But I ended up quickly making that one in photoshop. However the one which looks like the traditional evolution image, is also good. That one came from here. It is for paralyzed patients, but I think the image is fitting.
If you come up with your own, send them our way.
Sent December 4th 2007
I just want to touch base with you and give you a quick head's up. Suzanne was just last night moved out of the ICU and into a regular room. This is the biggest step forward she's made in the last few weeks. Her anxiety for the move is understandable, as she will go from a 2-1 nursing ratio to 6 or 8 or more to 1. However, they wouldn't have made the move had she not been ready.
Her physical therapy yesterday was quite extensive. Her range of motion in both her arms and legs is greatly improving. Although her right wrist and fingers are still quite swollen and hard to control, she is leaps ahead of where she was. There are still many more small surgeries to be completed to finish closing up the arms and legs, to graft some skin and to make her legs comfortable in the pending prosthetics. But for all accounts, she's doing well. For a while she was going back and forth with infections and high white blood cell counts, some grafts that didn't take and generally slow progress. If she could only see how far she's come, she would be amazed. We all are, but in her limited view she can't see her accomplishments, only her present inability to hold a fork or make a fist. Not to mention the fact she can't get out of bed.
But over the next few months the surgeons will be finishing up their tasks and the physical therapists will be working her muscles. Before you know it, she'll be walking out of there. There are some future moves planned. One move will be to the National Rehabilitation Hospital in DC and potentially another to the Curtis National Hand Center in Baltimore. The NRH handles many of the returning soldiers, who have prosthetic rehab to complete. And CNHC would be to do some reconstruction of her forearm and hand muscles, to improve grasping and dexterity. But that is further down the line.
I also want to send thanks to everyone for the cards and gifts for Suzanne and Gabby. They are all very much appreciated. The cards have been lining the walls in Suzanne's room. I look forward to getting her online and responding to everyone's email and letters soon.
For now…
Love,
Patrick
Sent November 9th 2007, to my family
Welcome to the Bionic Mom blog...
I would like to thank you for taking the time to have a look at this site. This is Patrick, Suzanne's husband. Here I will be periodically posting some updates about Suzanne's status and recovery. Many have asked me to start a blog to update everyone, rather than send occasional messages but, I have resisted on the basis of Suzanne’s privacy. However, I have decided that I will post some information so everyone is “in the loop.”
Patrick